There is always a story waiting to be told.
Grab a cup of coffee and join me as I share some Salt & Light.
Showing posts with label Organ Donation. Show all posts
Showing posts with label Organ Donation. Show all posts

Saturday, August 4, 2012

Heart Day


Driving back from Grafton was reminiscent of 10 years ago - yet having the kids with me in the car made it surreal, and powerful. The long drive on the highway after a long day at the hospital, feeling both exhausted and energized, felt like it did when I drove home from Northwestern in Chicago after Mark had his kidney-pancreas transplant. It was difficult to leave Mark at the hospital then, what to me felt like “alone”, but I had to get home to the then two-year-old Remy and four month old Dax. I wanted to be both places, but had to choose one. There was nothing I could do whether I was at the hospital or not. Even tonight I, I know now more than ever that God’s got this. But I still wish I was there in the room when they come to draw blood or check a blood pressure. It just “feels” better.  However, tonight on the drive home the kids and I talked. A lot. Man, did we TALK! We talked about my book, what I was titling it, what the cover would look like, what it was about (would today be in it?). How would revealing our private life in print to the world make them feel, what would people say, how would they be treated? We talked about being a Christian, being salt and light to others.  We talked about being persecuted as a Christian, for standing up for our beliefs. We talked about all that God has done in our lives, what He is doing right in this moment. We talked about all the “whys” we’ve experienced. What God is doing with the “whys” in Mark’s and my life, but also how He’ll use “whys” in their lives, too. We talked and I “preached” so much, that at one point I was worried I’d missed our exit and was half way to Green Bay

Things got repeated throughout the day. From stories, to prayers, to simple conversation – we know this:

No matter the situation or circumstances one thing is constant – God.

God is the same, yesterday, today, tomorrow.

There are angels among us. Angels are very real.

The Lord uses these situations not just for us, but for others. Who knows what kind of impact todays’ events might have on others… Christian’s and non alike.

No amount of thinking or worry is going to change what God has already written. So we pray!

So, today Mark and Remy played in a benefit softball tournament for Living Hope International through our church Word of Grace. They had already played two games and had had a long break. Mark had been having high blood sugars, and when they started to play the third game, Mark started getting severe cramps in his legs. He said he had never felt anything like it, ever before. The weather was extremely sunny and hot today, but Mark was staying hydrated and just could not make sense of it all. So, he took himself out of the game, and felt like he was going to be sick. He did not get sick, but made it to the bathroom and sat in a chair near the restrooms, I guess. He sat down and felt he was going to pass out, but only remembers coming to with everyone around him while he was flat on the concrete. Paramedics came and checked his blood sugar and apparently Mark was talking to them and others, but he does not remember it. When in the ambulance, they did an EKG and did not like the result, and started asking the heart attack questions… nausea, pain in chest, numbness, etc. Transport then changed from the local hospital to one a half hour away, as it is better equipped to handle a heart attack situation. Mark was given two bags of fluids in the ambulance and when they did the EKG at the hospital it looked good. Mark was still not in any pain, more like uncomfortable from the leg cramping. They drew up a ton of blood work for every function you can think of. The triponin level was elevated. This tells them about muscle damage to the heart.  This level is rechecked three or so times during a certain amount of time – like 12 hours or something. There was concern that if this level rises, they would want to do testing to look at the heart. This would require dye, and with his kidney post-transplant, he would require extra monitoring. They would move him to another hospital that was more equipped to handle a transplant patient. So there was potential of Mark being moved. So I got worried when the second level of triponin was also elevated. The nurse said when we left this evening that the Doctor had not called back about the levels, so at that time no news was good news. There still needs to be a few more labs to be done to draw a conclusion on the whole heart attack thing. Mark remains at the hospital tonight for monitoring. He had been moved to a room, eaten dinner and had a visit with our Pastor and his wife and my parents (they brought insulin pump supplies from home as Mark needed a site change! Of course he did!)  He has remained alert, never in any pain and considering today’s events - doing quite well. 

Thank you for all prayers. Keep them coming. I’ll keep you posted.

Friday, April 29, 2005

That's Incredible!


Anyone remember that show? You know, I think I am thinking of That’s Incredible, but I believe it was Real People with Sarah Purcell. Do you remember that show? It’s what That’s Incredible is the spin-off of. Anyway, the only Incredible we worry about in this house these days is Mr. and Elastigirl. The kids love the movie The Incredibles. Frankly, so do I. Even before the kids had seen the movie and got on the superhero craze, I snapped a picture of my two adorable children in the dress up outfits of Batman and Superman, well, Supergirl in this case. With April coming to a close, I have only hours left of National Donate Life Month. I had planned on sending an email blast to tell everyone to be a Superhero and sign a donor card. But when we moved back in the house after getting the hardwood floors done, the month was half over. It still feels as though it should be April 15th or something. I didn’t do a lot of things I wanted to this month. So, I’m just going to post the picture and information here, now. Be an organ and tissue donor and don't forget to tell all your friends and family to be a superhero, too! Just tell them:

Want to be a Superhero? It's easy!
All you have to do is print this card ,
fill it out and carry it with you.
Just be sure to inform your family of your wishes.

Outfit changes in phone booth optional.

Thursday, April 28, 2005

Fehget about TV turnoff week

That’s how Remy says forget, try it - “Feh-get”. A bit Sopranos accent, maybe some Philly, totally cute. I find myself saying it now. Said it just today to the neighbor. Our next-door neighbor does woodworking, so he came and finished the crown molding in our bedroom. It’s beautiful. I was beginning to feel bad having the kids watching their shows this morning while we got our day rolling. The kids watch a bit of TV in the morning, especially on Tuesdays and Thursdays when Remy doesn’t have school. I am not a morning person, and it takes me a bit to get going. So as I sip coffee, they get a dose of Dora. Remy even says that with a wonderful rolling “R”. Dax is just like me, a total Tv-holic. He doesn’t understand Tivo yet, either. If I turn off the end of a show, he’s all, “But Backyawdigans is coming up next!” Nope, it’s not buddy, it’s Tivo. What did our parents ever do with us without Tivo? So, anyway, just about when I was feeling bad about the kids and the TV with the neighbor here today… Joe and Blue taught Remy how to tie a shoelace! And, because of Tivo, I could rewind “Shoehorn”, a.k.a. Randy Travis, telling her how to tie the laces! Remy was excited and so was I. It just came to her all of a sudden! We’ve tried it in the past, but it wasn’t working. So thank you Joe and Blue! Now Remy is all about getting shoes that actually have laces! All hers have Velcro or buckles. She is getting to be such a big girl. She said something today that was so funny and wise coming from her. I can’ think of it now, maybe because of the loud snoring coming from the bedroom downstairs. My word, Mark snores so annoyingly loud. It’s loud and I annoy easily this week. It seems to be the general consensus. I talked with my mom, sister and girlfriend whom all seem to be feeling the effects of the full moon, like me. My mom literally said to me today,” How long is this full moon going to last?” Weird, just weird. But everyone’s kids are acting up and we’re all on edge. Well, I am on edge. Everybody else is on their own. Edge or not. Anyway, I hope that after Mark’s surgery next week he stops snoring. I know that it sounds weird, but after his transplant, he lost a bit of weight, and his snoring stopped! Or maybe I was just so dog tired that by the time I finished nursing Dax for the millionth time, or driving home from the hospital with him screaming for an hour, or cleaning up after the sick dog after driving home from the hospital for an hour with Dax screaming, that I just didn’t hear him snore. Ugh, so many of the memories come back now and again. It was awful. I am so glad the kids are the ages they are now. Dax especially. He is just a sweet boy. He compliments all the time. He says to Remy what a pretty dress she has on. He tells me that he likes my earrings. Out of the blue, he’ll say, “Dad, I love you” or to whomever he’s saying it. He has a face that everyone says you just can’t say no to. Well, we do, and a lot. He has been getting in a bit of trouble lately. He is just breaking everything. He gets his hands on something and he has to mess with it til it either disintegrates or sister is crying about it. It was hilarious though today, he had on his Superman dress up outfit, with cape. He then came running to me with these turquoise high heels on. The poor boy has so many pictures of him in sister’s dress up things. But he’ll come to me with one of my purses from the closet and say, ”Mom, I have something special in here for you.” And give me something, a Polly Pockets or matchbox or something. Again, too sweet. I get so sad about Remy starting Kindergarten next year. What will Dax and I do without her around? I can’t help but feel that I’m going to literally miss having her here to play and stuff. Plus, I am getting verklempt about whether or not she should be going to the public school. Sometimes I think she really should go to a Lutheran school. I can save that for another blog. But, she is pretty excited about starting school in the fall. Mark and I have her orientation next week; hope he can wobble over there with me post-op. I worry about her being so young when she goes off in the fall. Will the other kids be more mature or mean? This is so hard, all the stuff you go through with the first child. I didn’t cry when she went off to preschool. The scrapbook maven that I am didn’t even take pictures that first day! But, the first day of Kindergarten, I’m gonna seriously lose it. I know I shouldn’t worry though. Remy is like 4 going on 15. Little Miss Independent. The other day she was doing the laundry. I didn’t ask her to help, she just did it. Emptied the dryer into a basket and put all the wash into the dryer. She EVEN cleaned off the lint trap! It was amazing. And now today, she’s tying shoes. I love life just the way it is, TV or not! But of course, Dax and I prefer it with TV.

Wednesday, April 27, 2005

Well it’s no wonder the man is retiring

I read that after the next Tour de France Lance Armstrong is retiring. Well, after tonight’s Cardio Cycling class at the Y, I can see why! My word, it was so hard! I can’t stand and pedal (known as second position) or do third position either which is like leaning over the bike. Holy smokes, I had two six-pound babies with no epidural and it was less painful than sitting on that spin bike seat. I even had the add-on cushy seat thing! I’ll tell ya, I am going to be sore tomorrow. I can’t believe that when he had cancer and things swelled on him that he just kept movin' on! You know what I am talking about right, you all watch Oprah, don’t you? They talked about it. I don’t want to talk about it. But one thing is for sure; I am ordering a Live Strong band ASAP. I don’t have one. I have a green Donate Life and a purple Live Well (National Kidney Foundation for kidney health awareness) but I hadn’t been quick to get the Live Strong one. Well, I’m gettin' one. I’m also going to dive into the book that he wrote that my friend Amy let me borrow. Now I am intrigued. All from one little bike ride. I came in the house and said to Mark, ”That was the hardest thing I’ve ever had to do.” He says to me, “What? Ride a bike?” Mark won’t be doing much of anything but watching movies and eating bon bons here in the next week. He’s getting his hernia(s) repaired down at Northwestern. I am kind of freaking out about it, but trying to stay relatively calm. I know that things won’t be as hectic as they were when he had his transplant. But the same transplant surgeon that did the kidney-pancreas will do this procedure, as well. That’s good. It’s also like an hour and half surgery instead of eight. Still, it’s scary and just well, okay, scary. So, I’ll be even more nuts than I have been this week. I am so distracted. I seriously am just not together. I realized it when I took Remy to school today. But man, I don’t know what it is. (The full moon?) Maybe Mark’s surgery is a subconscious worry. This also just happens to be the busiest time of year in general for me. But if I wasn’t this busy, I would be miserable. I have to be busy, it’s just something about me. My kids are well on their way. They don’t seem to be happy lately unless they are miserable. It saddens be greatly. Remy had picked out an outfit that totally didn’t match and I said okay to it. It’s a battle I am trying not to pick anymore. But, even after saying yes (did she think I would say no?), she still was upset and went on to pick something even more mismatched. She was upset with me about having to wear long sleeves so she just went way over the top on this one. But, it all got straightened out and she went to school looking lovely. When Remy went to bed I sat with her for a bit, and Taffy was lying in there with us. I love to see how much she likes having a dog. She had her arm wrapped around her and would stroke her fur now and again. It was sweet. Then, you could tell it kind of bugged her. Taffy was kind of laying on her legs on top the blankets. Remy tried moving a bit and couldn’t. As we laid there listening to the Playhouse Disney CD, the Great Big Book of Everything song from Stanley came on. There’s this part in the song with kazoos that reminds me of Sixteen Candles! That made me think of teen movies, which I still love. I think Clueless is one of my favorite movies. I loved Felicity and 90210 when that was all on TV, too. Speaking of ages ago, they had great tunes in this Cardio Cycling class tonight. I’d like to be able to get the “Y” soundtrack. It was a great mix of Beastie Boys and Red Hot Chili Peppers with some Green Day and Kelly Clarkson mixed in. Yes, you read that right. This chick that’s never watched American Idol likes Kelly Clarkson. My niece would be so proud! I want to start making my own CD’s to play in the car. When the weather gets nice I love blasting the tunes with the windows down. Yeah, I still think I’m, like, 18. I must look so cool in my SUV... with the carseats in back. I am a total dork. And, how many places do I really go by myself. Yeah, that’s me in the grocery store parking lot, jammin’. Getting back, it must take a lot of time to do though, compile all the songs you like. How do people do it for iPods and stuff? I am so not there yet. I looked at the Yahoo Buzz the other night and checked out the soundtrack music links, I love soundtracks! One link led me to the Garden State soundtrack; the movie from Zach Braff. I like him on Scrubs. Funny guy. That then led me to his blog. I am so intrigued by this blog thing. Especially intrigued by the celebrity blog. I checked out David Duchuvny’s (he is promoting his latest film, House of D), which is here on Blogger, before starting my own blog. I used to watch X-Files with Mark but I love Return to Me with him and Minnie Driver. You know, it’s a transplant movie. We actually saw it long before we even knew about Mark needing one. Weird when I think about it now. I can’t even get through the movie now without bawling. So, it’s neat to me to read these other people’s random (promotional, subliminal perhaps even?) thoughts. Totally enjoying Zach Braff’s blog, though it makes me question if it’s his or not at this point. Pretty sure it’s him. He writes, “anyone saying it’s me at any other site isn’t me.” That’s like when you get those emails that are a hoax. See Step 3 from about.com’s steps to spot an email hoax:

3. Look for statements like 'This is NOT a hoax' or 'This is NOT an urban legend.' They typically mean the opposite of what they say.

Okay, so maybe not totally the same. But it seems like it to me. Make a note to self - bookmark the about.com Urban Legends site and go there anytime you question an email that you get. Do that before sending it on to everyone else! Now, back to the ZB blog, he does something that I think is cool. He’ll list things to check out, like music or just sayings or whatever, sometimes-random thoughts. So, here’s my list:

Live Strong
Moreena started it all for me!
And yes… I’m still feeling the burn.

Monday, April 25, 2005

Mr. Mayor and the moon


Yup, those are my kids with the Mayor of Joe-ville. Mr. Mayor came out to the 15th annual tree planting and organ donor dedication, as did Illinois Secretary of State Jesse White. Quite a day! It started out questionable (more like downhill). The kids were ornery by breakfast, which looking back at now I can’t even remember what the deal was. I think it was something about where we were all to sit at the table. This is a big deal to the almost three and five year-old in the house. I was not in the mood. It progressed from the children to my husband. They all managed to bug me to the point I stated, “It must be Mother’s Day. Is that today? The way everyone is acting, it really must be my day!” I get pretty uptight about the way “Mom” gets treated. So, it was one of those days “Mom” was feeling no R-E-S-P-E-C-T. The clock was ticking closer to the tree planting and I still hadn’t showered nor had the kids eaten lunch. We ended up making it to the ceremony, late as usual. I am late for everything in case you did not already know this. I assume I can get anywhere I need to be in 15 minutes. Even if I need to be to the Indiana border, 15 minutes is all I need to make that hour trip. As soon as we walked in the door I could see my folks and Dax’s godmother and her kids. The fact that they were there meant so much! But then I felt so bad that we were late. But, neither of them probably thought anything of it, as they know me better than anyone. The ceremony was lovely and it was just really cool (for lack of a better word) that Jesse White was there. His support of organ and tissue donation and awareness in Illinois is just awesome. The whole ceremony just took on a different kind of feel from the mayor to the color guard to every person that spoke. Though, I couldn’t help but think of what an episode of American Idol must be like as the one girl kind of crackled her high note as she sang the last song of the ceremony. I began to feel like Simon or Paula, this coming from someone who has never even watched a single episode. I don’t even watch Survivor. The Bachelor is the only reality TV I watch, I admit it. Every season I swear I am not watching it ever! again! and I still get hooked. It’s one part of how I started an interest in this blog thing. I read a recap of The Bachelor from RealitySteve.com and it was hilarious. I could read that and not even have to watch the show. But what fun would that be. Bless this guy’s heart, he watches all this reality “stuff” and then writes a column about it all. Down to his own commercial recaps. Good stuff. I started watching SuperNanny and can’t even bear that most times. Though it affirms that I do know what I am doing as a parent, as we already do most of what she is teaching the parents to do on the show, anyhow. It also makes my kids little angels in comparison to some of what JoJo has to deal with. My two are just sweet kids, really. Mark really wanted Remy to say “Hi” to the Mayor to see if he remembered her. She was included in his speech at the tree planting last year. When the Mayor came around by the kids his face lit up and he acted like he actually remembered her. Not by name of course, but just like he knew her. But he was once known as officer friendly before he became Mayor and was even voted the "hottest" mayor in a radio station contest last year. He won that title because of days like today. He makes everyone feel good and listens and participates in his community. I love this town! Okay, so where was I? We shoveled some dirt on the tree and the kids played hide-and-seek in the grove of trees from previous years’ planting ceremonies. It was cold and windy but the sun was shining. At least it wasn’t snowing. We had a few flurries in these parts a few days ago. Someone was really looking out for us all. I have to keep things like that in perspective. It ended up being a pretty nice day. Then there was shopping at the grocery store after dinner (and I hate going without a list). Remy wanted to sit in the cart which she is much too big for so she’s pitching a fit and then the kid at the register is like “credit or debit” and I am oblivious to the whole thing as Dax nearly launches himself out of the cart head first to the floor I look at Mark and he’s all “You can pay it.” Thanks for that. And, I forgot to use my $5 off coupon! I do prefer to shop alone and have some clue as to what I am doing. But I will blame everything on the full moon. That, or the black cat that crossed the road right in front of me as I was heading home the other day. I did retrace my route later that day, as I had to pick up Remy from school. Does that negate the bad luck? Not only am I notoriously late, I am really superstitious. You should see me when my kids get around ladders or use their umbrellas.